Daarom doe ik mee
In 2022 I cycled 2350km from Amsterdam to Alicante to raise money for the Usher Syndrome Foundation.
My motivation for this biketrip was my daughter Eleyna.
Unfortunately she has Usher Syndrome, a genetic condition causing deafblindness.
At this moment there is no treatment available.
It was a physical demanding, challenging and emotional biketrip.
But also a beautiful experience and gave me some peace of mind.
I had the feeling I am at least trying to do something about the whole situation.
I was very pleased with the support I received from family, friends, colleagues, media and that I was able to spread the word.
Also I reached my financial goal and raised over €26.500 for the Usher Syndrome Foundation.
Unfortunately there is a need for much more money to develop a medicine and stop the process of deafblindness.
Therefore my fight against Usher will not stop.
In the spring of 2024 I will get on my bike again and cycle from San Diego to Jacksonville. A 4200km trip from the west coast to the east coast.
Again I need your support to keep my dream alive that my daughters life will not get dark and silent.
Every kind of support will be much appreciated, thanks.
A proud but also scared and restless father.